June 18, 2013

Inhale Peace, Exhale Love

Ever since I took on a deeper level of personal evolution, my mind has been making mischief ~ if you’re on a spiritual path you may have heard of “monkey mind.” It seems that I have a whole gaggle on screaming monkeys these days. Sometimes they wake me in the middle of the night, demanding my attention and wakefulness. It’s exhausting! The mantra, “Inhale Peace, Exhale Love,” is what I say, when I remember! And it always brings me to a more peaceful and calm place inside. I’m very grateful for that.

Earlier this week I taught a class on Intimacy and Sexuality with Cancer at the Cancer Support Community. The attendees included a broad range of cancers, many different phases of treatment, and people who were there because they wanted some hope, inspiration and tools. We had a lively conversation and I gave them 10 tools and “power tools” to help on their journey. This was the first time many of them have had the opportunity to share their experience and ask questions of a very practical nature, including, “Is it really possible to wake up my libido since it doesn’t even seem to have a pulse these days?” “The cocktail of medications I take is keeping me alive and the tumors are managed, but I’m so exhausted all I can think of is when is my next nap ~ how can I muster the energy for intimacy?”"What kind of lubricant can I use that won’t cause an infection?” “How can I ask my partner to hug me and stroke my back?”

As we talk and I listen and offer things to try, ways to think, practices to build bridges to intimacy, the monkeys come knocking at the door of my mind. They say that I’m a fool to try to help in such a hopeless situation; that I might as well give up and go home, and other equally un-inspiring things. Ah, this is the moment to remember, “Inhale Peace, Exhale Love.” And I continue. My dream and my passion trumps the monkeys every time.

It occurs to me that this is the journey we’re all on, of remembering what we need to remember, when we need to remember it. Whether it’s cancer, menopause, a challenging business situation, a new exercise program ~ anything at all that challenges us ~ remember that the monkeys can be trumped. Maybe all it takes is a banana!

“If you Think You’re Enlightened, Spend a Week with Your Family”

Ram Dass, a very wise man, said this many years ago. I’ve just spent a week with my family and it deeply challenged what I think of as my evolution. It was humbling, moreso on this visit than any other.

Humility has many definitions, and the ones that seem most relevant to me have to do with pride or arrogance and the ego.  I don’t think of myself as arrogant, but I am proud of who I am and what I stand for and how I love. And sometimes I’m not aware of the impact I have on others.

It’s a strange dance with aging parents who are proud and want to maintain independence, but don’t drive well, can’t get up on ladders, walk with canes or walkers and don’t hear well. With an open heart and the best of intentions to be a helper and supporter, I offered some ideas for ways to help them stay independent, thinking I was offering a gift. But a gift offered is not a gift if not perceived as a gift!

Watching my parents decline physically and mentally is heart-wrenching. Between my partner and I, we share 4 parents all in various stages of this. One resides in the Alzheimer’s unit of a nursing home, one has a son living in their home who does cooking and errands, and 2 live alone without using local support services, choosing fierce independence. They all look like they could be blown over by a stiff wind. That pride, stoicism and independence allows them to go on. And in the past few weekends, we’ve been the ones to climb the ladders to change the batteries in smoke detectors, change light bulbs, maintain irrigation systems, program remote control devices, and return some phone calls. 

Doing what is asked is a joy; offering other help that is not accepted is a challenge. And therein lies the humility. Where to draw the lines? When to report a dangerous driver to DMV, knowing that will be the end to independent living? When to honor a request to not visit? How to show love and appreciation with no expectation of it being received or returned? How to maintain dignity and safety simultaneously, when they may be in conflict?

Then there are the discussions about finances and what care is best, and who makes the decisions. How do you navigate this with siblings who have different opinions and agendas? How do we place our parents needs in the forefront and accept our differences without letting them distract us from the central goal of having our parents age as gracefully as possible?

As you can see, I have more questions than answers. And all of this reminds me of how I support those on the cancer journey. There are so many difficult choices to make that have long ranging and often-unknown consequences. Standing alongside those on the path, loving them and assisting when asked, sharing wisdom and learnings when appropriate, and loving more so that they can live their best life, feel empowered and respected as the navigate the choppy seas of cancer treatment and an integrated and loving life.

Always reminded that I may not be as enlightened as I think I am.

Why Mindfulness is Vital to Sexual Health, Guest blog by Debbie Woodbury

From time to time, I will offer guest blogs that I think are worth reading. This one from Debbie Woodbury, founder of Where We Go Now As Cancer Survivors.

By Debbie Woodbury, founder WhereWeGoNow
Most of us want great sex – in theory. Sure, we’re interested, but we come up short when it’s time to actually make it happen.
The operative word is “time.” Making time for sex is imperative to having it and enjoying it. And making time isn’t just about clearing a space in your schedule. It’s also about clearing a space in your mind.
What does mindfulness have to do with sexual health? This question is best answered by asking another question, “Isn’t sex better when you are entirely engaged and in the moment?” Of course it is!
Mindfulness is conscious awareness of what you are feeling and experiencing in the present moment. One of the best examples of being in a mindful state is any moment that you are joyfully, unselfconsciously and completely engaged in sexual activity.

What can you do to be more mindful during sex? The opposite of mindfulness is multi-tasking and it is poison to sexual health. The more I practiced multi-tasking, the more difficult it was to focus on one thing at a time, including sex. To break the multi-tasking habit, practice focusing on the little things that make up daily life. If we can become mindfully aware while we’re washing the dishes, we can do the same during sex.

Without a doubt, the simplest and most effective tool to break the multi-tasking cycle is conscious breathing, which calms and refocuses us. From conscious breathing, we can expand into practicing meditation and yoga as other effective ways to retrain the multi-tasking brain.
Do you want to know another benefit of mindful awareness during sex? In addition to promoting sexual health, mindful awareness also promotes relationship health. The more mindfully focused we are on our partner during sexual activity, the deeper our connection and bond. Sounds like a win-win for everyone!

It just goes to prove again that our most important sexual organ is our brain.

Copyright © 2013 WhereWeGoNow, LLC

Maya Angelou said, “There is no greater agony than bearing an untold story inside you.” The healing power of sharing her story as a cancer survivor compelled Debbie Woodbury to found WhereWeGoNow, an interactive community for cancer survivors creating inspired healing, wellness and live out loud joy. Debbie is also a blogger at The Huffington Post, an inspirational speaker, a support volunteer with The Cancer Hope Network, a member of the Carol G. Simon Cancer Center Oncology Community Advisory Board, a patient educator with the Pathways Women’s Cancer Teaching Project, a wife and mother, and a former very stressed out lawyer.

You can also find Debbie on Twitter and Facebook.

To Life!

In the past week so much life has happened ~ it has felt a bit like drinking from a fire hose!  We drove out to the Pt. Reyes National Seashore on Friday night to spend the weekend in a gorgeous treehouse inn to celebrate a dear friend’s birthday with a group of pals. We told a lot of stories as we’ve all known each other for a long time. It was deep, sweet and intimate and my soul got nourished.

We left in the middle of this celebration to be the MC’s for a celebration of life for another friend who died a year ago ~ his life snuffed out the day before his 53rd birthday by cancer. More stories and lots of tears and laughter. Another deep, sweet and intimate event.

Then the Boston Marathon bombings sent shock waves to my heart. I lived in Boston for many years and watched thousands of runners along Beacon Street in Brookline, cheering them along. This senseless horror has really rocked me, and I’ve been holding those affected by the bombs and my Boston area peeps close in my heart and prayers.

Yesterday morning My friend Lenore Lefer died, surrounded by her family. We met more than 25 years ago because our husbands were part of Dean Ornish’s research study on reversing heart disease. We stayed connected through my cancer, her son’s cancer, and our activities at Commonweal. Last fall she was diagnosed with pancreatic cancer and chose not to have medical treatment. She was at home bathed in love and laughter. She lived a very good life. Now some of her women friends are bathing her body and laying her out in flowers. Godspeed, Lenore, the world is a better place because you brought so much love and wisdom.
This morning I attended a Bar Mitzvah, a celebration of a boy becoming a man.
I feel very blessed to know so many extraordinary people, to love and be loved abundantly, and to have this day to live, love and be grateful.

We Never Know…

Last Friday morning I had tea with my daughter before I headed off for a weekend women’s retreat in Napa. As I was walking out the door for the retreat, my daughter called to say that she was on her way to the Emergency Room to determine if she had appendicitis. She had a tummy ache in the morning that got progressively worse as the day went on. She seemed fine when I saw her and she didn’t mention the tummy ache. 6 hours later, it had all changed.

After a few hours and some tests, she went into the Operating Room and had her appendix removed.  The surgeon said it was a “textbook case” and that she was doing great. He had already signed her release papers so that she could go home as soon as she ate some solid food.

In the blink of an eye, my baby went from feeling fine to being in recovery from abdominal surgery. It was shocking how quickly it happened. My Mama Bear energy has been on high alert for a week now, and is just beginning to relax.

This has all left me broken open by the mysteries of life. I assume that I’ll wake up every morning, ready and able to enjoy another day to live and love. I assume that my loved ones will be fine. I assume that life as I know it, will go on. And it’s not always that way. I know this from all the times life has broken me open. And yet, each time it happens it surprises me.

I marvel at how delicate we are and at how strong we are. I wonder about the mysteries of our bodies and how they become ill or injured, and want to return to wholeness and health. I’m inspired by every life story I hear, and how life events change our stories.

What’s your story? How has life broken you open to the mysteries of wholeness, health, love, what matters and what doesn’t? If you’re willing, please share your story here. Knowing yours makes mine even more beautiful.

Love,

Barbara

Hearts Broken Open

Tree women, barbara musser, sexy after cancerMichael Lerner’s talk at the CPIC breast cancer conference a few weeks ago continues to resonate in a very deep place within me. As I explore what it means to have my heart broken open, I’m discovering some pearls about this:

  • My heart broke at a young age when I felt unseen and unvalued in my family. How I coped with this was to build walls around my tender heart ~ walls designed to protect my heart from breaking again. I’ve lived much of my life in this protected place, even as more and more heart breaks happened. They are all piled up on those walls, like Gargoyles looking down on anyone attempting to come close to my heart.
  • Another way I coped with heart break was to be very busy, driving myself to do good in the world,  to help and to love others ~ so that they would think I was worthy and lovable. But if they came close, the Gargoyles would get them in some way, with defensiveness, sarcasm, not being allowed all the way in.
  • My adult life has been about teaching awareness and love ~ a humbling example of teaching what I most need to learn.
  • There’s been the ache of not being fully seen by others, and the realization that if I’m protecting my heart and not fully revealing myself, it’s not possible to be seen.

During the past few years as my focus has turned to helping women on the cancer journey to know that they are beautiful, desirable and lovable, my heart is broken open again and again. I’m rocked to my core by the courage it takes to be on the cancer journey; to want to heal more than the body; to allow the healing to happen and to seek healing. My heart has been broken open in spite of my survival and coping strategies. Seems like this is what it has taken for me to wake up in this way. I’m grateful for that.

And I’m experiencing the rawness of peeling away the layers of protection, realizing that I don’t know as much as I thought I knew, and not really knowing how to help, or if help is even wanted.

Today as I walked my dogs on the mountain I came upon a huge sprawling live oak tree, with many branches kissing the earth and then rising toward the sun, with several trunks wrapped around each other in support and growth and then rising toward the sun. As I looked at this beautiful tree, I realized that we need each other in ways we might not even be aware of.

What do you need? Is there a way that someone who reads this, or I can hold your broken open heart gently as you rise and grow toward the sun? Shall we walk this journey together, knowing that beneath all the thoughts we’re not separate from each other?

If you know an organization where we can speak, or you can connect us with someone who does, shoot us an email to info@sexyaftercancer.com. We want to take this show on the road!

CPIC Report

Last weekend I attended the CPIC (Cancer Prevention Institute of California) annual breast cancer conference. Held at the Golden Gate Club in the Presidio, the venue itself was worth it! Spectacular views of the San Francisco Bay out a wall of windows was a gorgeous view as I listened to the latest in research and environmental updates related to breast cancer. There were 3 presentations that were the highlights of the conference for me:

1. Michael Lerner, founder of Commonweal, talked about poetry and the soul, and how there’s an opportunity to live your precious life once your heart has been broken open by cancer. It’s a portal into the deepest realms of what really matters, a time to explore what all the great traditions teach about suffering ~ that the purpose of suffering is to break us open to the deepest possibilities of love. He asked some profound questions including:

    • How do you use being broken open to journey further into what matters now?
    • What skillful changes will you make to move toward what matters?
    • What areas of healing do you need?In the end, the powerful focused intention to live as well as I can for as long as I can, is where true healing and true living coincide.
      • Healing
      • Medical therapies
      • Complementary therapies
      • Pain and suffering
      • Death and dying

2. Lynn Westphal, MD, talked about fertility and family planning and the current options for women facing cancer treatments that will impact fertility. She is a pioneer in freezing, eggs, embryos and ovarian tissue. The good news is that there are more options than before, and more help available to women and couples who have not yet had their families and want to retain options. She is part of a Symposium at Stanford in May, and I hope to attend.

3. Jeanne Alexander, MD, talked about intimacy and sexuality. She is a wonderful woman, a psychiatrist who talked about the dynamic interaction between the psyche, the environment and biology as the basis for libido. Regarding sexual function, there is an obvious impact on libido and sexual activity when health declines, as it often does during cancer treatments. For women it’s complex because there’s no evolutionary advantage for women to have sex, especially when we’re tired, ill, stressed or depressed, even though we feel better when we do. If we don’t want to, it’s a bigger hurdle to overcome.

Her talk was informative and the only real option she sees is hormonal help. And that’s not an option for many women, so it’s a bit of a Catch-22. I talked with her about some of my work and discoveries of what works, and she was delighted to know this. She thinks we can do some interesting things together, because I pick up where she leaves off.

Attending this conference and the C4YW conference the week before, I was around about 1000 women with breast cancer. I talked with many of them and there’s a lot of sadness, grief, confusion and resignation about their intimate and sexual lives. It’s a HUGE opportunity to help, give hope and inspiration and plenty of cool tips and tools to remedy the situation. More than ever, it’s time Miss Kitty and me to do more teaching.

If you know an organization where we can speak, or you can connect us with someone who does, shoot us an email to info@sexyaftercancer.com. We want to take this show on the road!

C4YW Report From Seattle Conference

 

Saturday morning I sat in a large ballroom filled with young women from around the US and several foreign countries. We were 650 strong, almost all on the breast cancer journey, all diagnosed before age 40. We listened to the latest research updates on why younger women have more aggressive cancers, and that there is a recognition that quality of life issues need to be addressed because the treatments are now very effective. Duh!

Down in the vendor area I had a booth. On the table was a big sign with the Sexy After Cancer logo. I wish there was a hidden camera to capture people’s expressions as the words registered with them. A few scoffed and muttered things like, “That’s an oxymoron if I ever heard one…” Some grimaced and walked by as quickly as possible. One turned and walked in the other direction. Some turned bright red. And many came to ask if this really was possible. I could see the pain, sadness and fear mixed with hope in their eyes.

I invited them to sit with me and tell me about them, not just the story of their diagnosis and treatment but also the story of how all of this impacted their sense of femininity, sexiness and their intimate and sexual life. They laughed, they cried, they raged, they were skeptical and curious and everything in between. All were invited to attend one of the two workshops I offered, “Bring Back Your Sexy After Breast Cancer.” I had no idea how many would actually show up.

Both workshops were filled to capacity, with about 130 people in each one. Several partners also came along. The time was filled with looking at the aspects that are part of our libido other than what happens in our genitals ~ the emotions, thoughts, spiritual issues, self-esteem, fatigue, grief. I gave them lots of tools, power tools and the Key to the Queendom for vaginal renewal. I answered questions ~ they had so many great questions.

Later, many came to see me at my booth and told me that this workshop was the highlight of the conference for them! That blew me away! And I knew that I must continue to do this work that I’m so drawn to do. I must continue to research and discover new tools to try out with my sweetie and then share them with those who can benefit.  As I packed up after the conference, I knew that many miracles had happened during the weekend.

On the plane home, a beautiful young woman sat next to me. As we chatted, she said that breast cancer runs in her family and she’s terrified that she’ll get it one day. She was eager to hear about the conference and what I had learned about prevention. And there was another sign to keep doing what I do. Thank you, Angels, I got the message!

 

Breaking News!

I’m now a regular columnist for The Pink Paper, a magazine published every other month. My column is called “Sex and Intimacy in the Pink”. In this inaugural column my topic is “Communication is the Best Lubrication ~ 5 Tips for Cancer and Intimacy.” Click here to see the magazine, and go to page 14 for my article!

Between this and the Sexy Saturdays blog for The Pink Fund there’s lots of new content available for you.

We will also add these to this website so that you can find them easily. If you like what you read, please feel free to share it with friends. Let’s spread all this good info around! And if you have topics you’d like to know more about, let me know that as well.

 

Wonderful Weekend at Harbin Hot Springs

Monday morning after a wonderful weekend at Harbin Hot Springs…. I had some big grief rise to the surface. It was grief about letting go of facilitating HAI workshops and how much I miss that. It was grief about sitting in the “bone-yard of my soul” as I await the blossoming of Sexy After Cancer. And it was grief about being ahead of the curve with my visions for most of my life.

As I felt into the grief and aloneness of that, I realized that it’s really about experiencing transformations and visions and then waiting for the physical realm to catch up, and about the energy it takes to be a pioneer and visionary.

As I sat with it some more, I experienced the gift that this is, and saw myself in a beautiful vessel traveling out on the edges of my visions, creating the openings for these visions to become available to the world.

I had a teacher who said that if you aren’t on the edge, you’re taking up too much space. Sometimes the edge feels like a knife blade and sometimes it’s the only place to dance. However I perceive it and think about it, it’s what I’m up to in this lifetime and I’ve stopped resisting it. I’m also asking for daily guidance about
♥ where to go
♥ what to do
♥ who to talk to
♥ what to say
It’s working…